Ways to Cope 

I'm always on the lookout for information I think could be helpful to those of us 'MS Sufferers'..... or rather, I should say "MS Recoverers' as Dr. Cartwright likes to call us.  Yes, I agree with him.......we have to look at ourselves as MS Recoverers as opposed to MS Sufferers.

So when I ran across this piece by Julie Stachowiak, Ph.D, who is also an MS Recoverer herself, I thought this was the perfect article to share with you.

She has a marvelous way of not only expressing her own feelings and experiences with her symptoms, but she also gives us a candid and very realistic look into what can happen to all of us who've 'suffered' from the symptoms of MS, and ways we can cope with what's happening to us..

So, I hope you'll enjoy this.....

Here's Julie Stachowiak, Ph. D and Multiple Sclerosis Expert in her own words.....



Most of us living with multiple sclerosis (MS) feel pretty bad at least some of the time. Many of us would actually say that we spend large portions of our days feeling downright horrible. For some of us, our good days would still inspire non-MSers to call in sick to work and lay in bed.

Yet, we bristle when we hear someone referred to as an MS sufferer in the media. When acquaintances ask us how we are doing, we say, oh, fine, unless we are having some new acute flare-up of a symptom that bears mentioning (usually because it is noticeable).

Speaking for myself, when other people mention my MS, I chirp my way past any insinuation that my life might be hard, then I rage inside because no one understands just how hard it really is. This certainly doesnt make the situation any better instead it introduces or worsens feelings of loneliness and isolation from those who love us.


So what is the solution? What do we do when we feel bad, but dont want pity? When we want to feel better, but know that might not happen (at least physically) in the immediate future?

I wish I had the answer. I dont. However, I do have a couple of suggestions on how to get past some of the worst parts, based on things I do (or dont do) myself:

NEVER COMPARE

Yes, it is true that there are many, many people who do not have to deal with MS, who are seeming to get off scot-free, while we have to strategically plan how to get enough rest to function throughout the day or worry that each twinge could mean that we are on our way to more discomfort and disability. It is also very true that there are many people worse off than we are at any point in time, due to health or other reasons.

In my opinion, comparing ourselves to people on either side of us on the suffering spectrum is not productive. Regardless of which way I am going with it, I get myself into a fix. Whether I am poor me, its not fair, comparing myself with someone healthier gets me into a why not them? place that I dont like.

Conversely, going in the at least Im not that bad off direction does nothing to make me feel better and actually brings up questions of how suffering is doled out in a cosmic way questions that I am unequipped to deal with at all, but especially if I am in a funk about my own condition.

The world is a harsh place. Without a doubt, some people get more of a taste than others of this harshness, much of it beyond anyones control. I have found that the only way to make sense of any of it is to do what I can to alleviate suffering (my own or others) through small gestures or temporary remedies or even loud screams. Focusing on the why, especially the why me? or why not me? has never done anything for anyone, I am pretty sure of that.

EMBRACE THE TINY GOOD THINGS

What is your favorite Jelly Belly flavor? What was your imaginary friends name when you were little? What is your favorite quote? If you could order any dessert right now, what would it be? What is the funniest dog name you have ever heard?

Okay, Ill admit it I would be fairly annoyed if I was reading this and I thought the author was telling me that life is a wonderful, candy-filled dream, just waiting to be grabbed. That is not what I am saying at all much of life is a gray place, but there are shiny specks in any existence. Make a point of hunting for them at times and you might be surprised at what you find.

Try going as far as coming up with a favorite memory or mental picture to call upon in your dark hours. For me, I have a photo in my head of my twins toes when they were six months old 20 of them, pink and perfect. This memory has gotten me through infusions, injections, MS hugs and MRIs, and made those things a little more pleasant and a little easier to endure. Give it a try.

GO AHEAD AND GET MAD OR SAD (or Whatever). Just Make Sure that You Stop at Some Point:

Those of us with MS (and our families and loved ones) have been dealt a blow (a big, lifelong, chronic blow, to be accurate) with our MS diagnoses. There is no doubt about that. No one should be expected to absorb a situation that changes our lives, our futures, our dreams, and not be bitter about it at times.

To expect people with MS and those close to us to not feel negative emotions about all of the MS crap that we have to endure is unrealistic. These sorts of expectations also set us up to fail at living a full life with this disease, as we need to dig deep and grapple with our emotions in order to live with them productively, rather than ignoring them.

I have been told by some readers that they have not felt empowered by my take on my disease. These people were disturbed that I wrote that a loss of some function made me feel sad or that a certain procedure hurt. They wanted to hear that it will all be okay, I guess.

However, I have been told by many more people that it helped to know that they were not alone in their negative emotions. They were helped by knowing that it was okay not to be brave all of the time, to cry when it hurts, to scream when it might help ease some stress.

In this, I try to take a lesson from small children. They wail, mouths open, when it hurts, they tremble when they are afraid, they fling themselves to the ground when they are enraged. Then they get that out of their system (or at least to a manageable point) and they go back to what they were doing. Im not saying that we have to be as demonstrative as toddlers, as most of us have lost the cuteness and social cache to get away with it. And, clearly, we have many more obligations to meet and roles to fill to give into our every emotional whim.

Still, there is something to be learned in watching a little person let it all out, then let it go that I think we could all get something from.

IMPORTANT NOTE:
There is a difference in feeling sad for a short time period and depression. Depression is a very real symptom of MS. If you have MS and feel very sad or have no interest in things around you, you need to seek help. It is not your fault, but you MUST get help.

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Thank you Julie!  This was a wonderfully written piece, and we are blessed to experience your candor and wisdom.  Thank you for sharing this with us.......

Enjoy!

Until next time,

Sue Ellen

http://www.nomorems.com

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Don't Forget Your ESSENTIALS and MORLOGIC!

 I wish I'd known about Dr. Cartwright and his supplements 'back in the
day' when I was suffering from MS symptoms.  He's formulated them
especially for us, and they're helping a whole lot of people. 
And, I take them too! 

Here are the links......

The Essentials:  https://m396.infusionsoft.com/go/mste/SED24/

MorLogic:   https://m396.isrefer.com/go/mbb/SED24/

Personally used by Sue Ellen Dickinson
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If you don’t have your copy of my book yet, “NO MORE MS, My Journey Back To Life", you can get it at my website:

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And, check out my cookbook, FLAVORS OF HOME and get all the delicious healthy recipes I have to offer you,.

=====Latest Reminders=======

You've got to see this short video that Scott and Dr. Cartwright have just released!  It's free, and the information is just what you've been looking for.

You'll find out what foods you should eat, and what foods to avoid to help control and get rid of your symptoms.

And this is so IMPORTANT because...

You'll find out how to control, and GET RID OF PROBLEMS with

  • BALANCE
  • FATIGUE
  • VISION
  • PAIN
  • BLADDER and BOWEL
  • DEPRESSION (and more)

Do you feel like you're going down the wrong road and getting worse?  You'll hear what to do to get rid of these symptoms.

It's all explained in a way you can easily understand.  And this information has been thoroughly researched by Dr. Rudy Cartwright who is a neurosurgeon (brain surgeon) and also an expert in MS.

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Dr. Rudy Cartwright is a brain surgeon (neurosurgeon) and an expert in Multiple Sclerosis.  Dr. Cartwright and his son Scott Cartwright are very passionate about helping us. They are both constantly working to bring the latest developments and treatments to help treat the symptoms of MS and I am dedicated to bringing that information to you. Make sure to keep an eye on your “Inbox” as I bring you their latest news and developments.

To find out about Dr. Cartwright’s Specially Formulated supplement for MS symptom relief  called THE ESSENTIALS and what foods you should eat or stay away from, click on this link:

https://m396.infusionsoft.com/go/7fssed/SED24/

And click this link to see a short video about the importance of THE ESSENTIALS,

Personally Used By Sue Ellen Dickinson

https://m396.infusionsoft.com/go/foodsvsl/SED24/

To find out why Dr. Cartwright can help you live a normal life again, read how he got involved with MS and learned what works by clicking on this link:

http://www.nomorems.com/dr-rudolph-cartwright.html

If you're looking for Dr. Cartwright's new MORLOGIC, you'll find it here....

https://m396.infusionsoft.com/go/mlweb2/SED24/

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Also, don’t forget to visit my website at:  http://www.nomorems.com

If you don’t have your copy of my book yet, “No More MS, My Journey Back To Life”, you’ll find it at my website http://www.nomorems.com

My book is now available on CD set, and also as Instant Audio Download.  You can be listening to me tell my story to you within minutes. 

You’ll find it all at http://www.nomorems.com

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Check out my new recipe cookbook "Flavors Of Home, Back To Basics Cookbook and Guide To Healthy Eating".  And now its available in paperback!

You'll find it at http://www.nomorems.com/flavors-of-home.html

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Need a spiritual lift?  Check out my new inspirational and uplifting book

“Looking at Life from the Other Side” at http://www.nomorems.com/the-other-side.html

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Your thoughts and opinions are very important to me, so send your emails to me at sueellen@nomorems.com

Disclaimer:  These statements have not been evaluated by the FDA.  This product(s) is not intended to diagnose, treat, cure or prevent any disease, but rather is a dietary supplement intended solely for nutritional support.  The information provided in this newsletter is for informational purposes only and is not intended as a substitute for advice from your physician or other health care professional or any information contained on or in any product label or packaging. You should not use the information in this newsletter for diagnosis or treatment of any health problem or for prescription of any medication or other treatment. You should consult with a healthcare professional before starting any diet, exercise or supplementation program, before taking any medication, or if you have or suspect you might have a health problem. You should not stop taking any medication without first consulting your physician.

Copyright Miracles Now LLC, Sue Ellen Dickinson 2014.  All Rights Reserved

Miracles Now LLC - Sue Ellen Dickinson
P.O. Box 687
Fort Walton Beach, FL 32549

sueellendickinson@gmail.com

Tel: 850-302-0173